Showing posts with label Fault in Our Stars. Show all posts
Showing posts with label Fault in Our Stars. Show all posts

Tuesday, September 20, 2016

"Fault in Our Stars" husband dies


Everything Wrong With The Fault In Our Stars

(CNN) - As the end approached, Katie Prager spoke to her husband from afar, unable to be with him.

Dalton Prager, the husband from the real-life "Fault in Our Stars" couple, died Saturday afternoon at Barnes-Jewish Hospital in St. Louis at the age of 25, his parents told CNN.

Katie was in hospice in Flemingsburg, Kentucky, when her husband passed away. The couple FaceTimed as Dalton was dying, said Debra Donovan, Katie"s mother.

"She told him that she loved him," Donovan said. "We don"t know if he heard her."

"Dalton fought a long hard battle with cystic fibrosis," Katie posted on Facebook. "He was a courageous fighter and "give up" wasn"t in his vocabulary."

Dalton had been in the intensive care unit on a ventilator for about two weeks before he died.

Just last week, the family had hoped to have a medical transport company fly Dalton from Missouri to a hospital in Kentucky. They wanted him to recover there, and then drive to their home, where Katie is receiving hospice care.

But in the end, Dalton was never healthy enough to fly to Kentucky. They were never able to reunite for a final kiss.

The last time Katie and Dalton saw each other was July 16, their fifth wedding anniversary.

A risky meeting

Katie and Dalton"s romance began online when they were both 18.

The started to fall in love as they communicated on Facebook, but they knew meeting in person would be dangerous for Katie.

Dalton had Burkholderia cepacia, a highly contagious infection for people with cystic fibrosis. Katie didn"t.

Her doctors warned her not to meet with other CF patients, for fear of contracting the bacteria. Still, Katie asked Dalton to visit her in Kentucky.

"I told Dalton I"d rather be happy -- like really, really happy -- for five years of my life and die sooner than be mediocre happy and live for 20 years," Katie said earlier. "That was definitely something I had to think about, but when you have those feelings, you just know."

Two years later, in 2011, Dalton and Katie married. Both were 20 years old.

Katie did contract Burkholderia cepacia, and the husband and wife waited for transplants at the University of Pittsburgh Medical Center. Dalton"s came first, on November 17, 2014, and it was a success. In July 2015, after a long fight with Medicare, Medicaid and her hospital, Katie got her transplant, too.

But their medical struggles continued. Dalton seemed to do well at first after his transplant, but then developed lymphoma. He overcame the cancer, but then was recently hospitalized with pneumonia and a viral infection.

Katie"s transplant never worked well. She was in and out of the hospital, and earlier this month doctors told her there was nothing more they could do.

Five years together

Now there are the memories of Dalton, a friend to everyone, who loved to cook, travel and go antiquing. He dressed sharply, and enjoyed spending time outside in nature.

Katie fell for his smarts, his good looks and his charming personality. Days after they started talking online, she knew she would marry him. Nobody had ever made her feel that way before, she said -- like she was the only girl in the world.

"He was one of the greatest people I"d ever met and not many people like Dalton come around so you got to get him while you can," said Katie, now 26.

Dalton"s funeral will be on Wednesday in Missouri, where his family lives. A GoFundMe page was set up to cover Dalton"s remaining medical bills and funeral expenses.

The day before Dalton died, Katie told CNN she had no regrets about their decision to meet in person. For all the time spent sick or in the hospital, it"s the time they spent together that stands out to her.

"It gave me some of the best years of my life," she said. "I"d rather have five years of being in love and just really completely happy than 20 years of not having anybody."

Copyright 2016 by CNN NewSource. All rights reserved. This material may not be published, broadcast, rewritten or redistributed.

Source: http://www.ksat.com/web/ksat/health/fault-in-our-stars-husband-dies

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Real "Fault in our Stars" couple takes a tragic turn


Everything Wrong With The Fault In Our Stars

Last year, Katie Prager, who has cystic fibrosis, fought relentlessly to get a lung transplant as Medicare, Medicaid and her hospital quibbled over money.

Her husband, Dalton Prager, who also has cystic fibrosis, received a transplant, too.

The couple -- she"s 26 and he"s 25 -- dreamed that after their transplants they"d travel together to every state and write a book about their love story.

But last week, Katie was put into hospice at home. The transplant didn"t work, and her doctors say there"s nothing more they can do.

"My body is just so tired," said Katie, who has spent the past year and a half in and out of the hospital.

Her husband is fighting his own medical battles. Dalton contracted lymphoma as a result of his transplant, and has since been treated. But he"s now at Barnes-Jewish Hospital in St. Louis, near where his family lives, fighting pneumonia and a virus.

Katie said the plan now is for Dalton to be flown as soon as possible to the University of Kentucky Medical Center so he can be closer to her.

Katie hopes he"ll be discharged next week and can make the one-hour drive to her home in Flemingsburg, Kentucky.

"If we only get to spend a day and a night together, we"ll be happy with that," Katie said.

Romance, despite a warning

Katie and Dalton"s romance started with a Facebook message when they were both 18.

"If you ever need a friend to talk to, you can reach out to me," Katie wrote to Dalton after reading that he was very sick.

"Sorry, but do I know you?" he responded.

No you don"t, Katie wrote back, and told Dalton that she, too, had cystic fibrosis and was struggling.

As they started to fall in love over Facebook, the next step was to meet in person -- but for Katie, that was dangerous.

Dalton had been clear with her from the start that he had an infection, Burkholderia cepacia, a horribly dangerous and contagious infection for people with cystic fibrosis.

Her doctors warned her never to meet up with another CF patient, for fear of contracting the bacteria.

But Katie listened to her heart, even if it might hurt her lungs. She asked Dalton to come visit her in Kentucky.

"I told Dalton I"d rather be happy -- like really, really happy -- for five years of my life and die sooner than be mediocre happy and live for 20 years," Katie says. "That was definitely something I had to think about, but when you have those feelings, you just know."

Two years later, in 2011, Dalton and Katie were married. Both were 20 years old.

Her doctors" worst fears were realized: She did contract Burkholderia cepacia, and both Katie and Dalton waited for transplants at the University of Pittsburgh Medical Center.

Katie says she doesn"t regret making the decision to meet Dalton in person.

"I don"t look back because I can"t really change the past. I"ve had this time with Dalton and so I might as well keep looking forward," she said.

Messages to those she"ll leave behind

Katie said she also doesn"t dwell on why life gave her so many medical challenges.

"I don"t really look at it as unfair," she said. "Everybody has their own battles and G*d chose this battle for me."

"If it"s my time for Him to take me home, that"s His decision," she added. "If that"s what G*d has planned, then I"m ready."

She does worry that her family will be stuck with funeral expenses after she passes away, so she"s set up a YouCaring page for donations.

As Katie prepares to leave this earth, she has messages for those who will remain.

"Just love each other," she said. "If somebody makes you mad, just forgive them."

There are things she"s done she wishes she could take back, she said. She"s been calling people to ask for forgiveness, and said she has more calls to make.

Another message: Do what makes you happy.

"I always wanted to go to Florida, and I never went," she said. "I wish I had just gotten in my car and went -- it"s not that far away."

"But that"s OK," she added. "I"ll be seeing Florida from heaven."

Source: http://www.cnn.com/2016/09/09/health/cystic-fibrosis-fault-in-our-stars-couple-hospice/

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